True stories

Precision medicine research offers hope that future patients will be placed on the most effective medication to alleviate their symptoms explains Ricky Chotai

Ricky Chotai, lupus UK, precision medicineI was diagnosed with lupus at the age of 25 years old. Unlike many, who wait an average of seven years according to a survey of LUPUS UK members, I was fortunate to receive my own diagnosis within a few months. Unfortunately, my mother wasn’t as lucky, experiencing a similar diagnosis in her twenties but facing a much longer path to confirmation. Now, I am trying to raise awareness and support other patients with lupus through my work as a LUPUS UK Trustee. Continue reading

I assumed I was in so much pain because I needed another increase of drug dose; it never occurred to me that the pain medicines were not working, says Louise Trewern

Louise Trewern, opioid painkillers, exercise, fibromyalgia, arthritis digest, pain medicineSix years ago, I went into my local community hospital for a rapid taper of high dose prescription opioids, due to my deteriorating health. I had been on prescription opioids for over 12 years for pain due to fibromyalgia and osteoarthritis. As well as severe pain, I was sensitive to absolutely everything. I couldn’t even bear the cat walking across my lap.
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